46 pages • 1 hour read
A modern alternative to SparkNotes and CliffsNotes, SuperSummary offers high-quality Study Guides with detailed chapter summaries and analysis of major themes, characters, and more.
Content warning: This section of the guide discusses systemic racism and poverty, patient neglect and abuse, and drug use.
Medicare and Medicaid, the two most closely scrutinized government healthcare programs in this book, rely on a larger system of corporations (including insurance companies, pharmaceutical manufacturers, and even hospitals) in order to function. This network came to be called the medical-industrial complex in the late 1960s. Abraham does not use this terminology in Mama Might Be Better Off Dead, but it was becoming increasingly popular around the same time that the book was published. The medical-industrial complex has been frequently criticized as fostering unsustainable conflicts of interest between the for-profit corporations and the sick populations that they are supposed to serve. In Mama Might Be Better Off Dead, this conflict of interest is illustrated in painstaking detail, constituting some of Abraham’s most scathing critiques of the American healthcare system as a whole.
Insurance is the corner of the medical-industrial complex to which Abraham pays the closest attention in Mama Might Be Better Off Dead, largely because flaws within the Medicare and Medicaid programs are politically actionable issues. She writes in the Introduction that she hopes that her observations “will be taken seriously by the leaders calling for change in America’s health care system” (8). As such, Abraham levels numerous critiques against the way the US government handles its insurance programs. She writes, “What bedevils the poor […] are Medicare’s gaps. It does not pay for medication, for transportation, for many basics that may sound wholly affordable to those with generous pensions or insurance to supplement Medicare” (4). She finds that these gaps fuel vicious cycles that undermine the quality of care for many American patients belonging to marginalized groups. For example, Medicare’s failure to cover transportation for patients like Cora ultimately prevents her from being able to get to the hospital for all of her necessary appointments. Her absences from the hospital lead to inconsistent care from doctors at best, and negligence at worst.
Furthermore, Abraham argues that other components of the medical-industrial complex are negatively impacted by the fraught insurance system, reinforcing medical workers’ inability to provide high-quality of care for all patients. Since hospitals in impoverished neighborhoods are saddled with patient populations predominantly reliant on Medicare and Medicaid, they rely on the minority of patients who have private insurance to help cover the costs that are accrued. This financial problem motivates hospitals to court wealthy patient populations and deprioritize low-income ones. When poor patients are designated second-class patients as a result of the financial logistics required to keep hospitals running, they inevitably receive lower-quality care than their wealthy counterparts. Abraham’s exposé of the Banes family’s experience within the healthcare system is full of examples of the ways in which their care was consistently deprioritized by the medical-industrial complex.
Despite being a book about medicine and the healthcare system, Mama Might Be Better Off Dead rarely addresses the hard science of the medical issues faced by the Banes family (except in cases where it is necessary expository information). Instead, Abraham is much more focused on the sociological causes and implications of their struggles. In particular, she illustrates the relationships between racism, the healthcare system, and health complications amongst marginalized groups. The specter of racial injustice looms over almost every single issue the Banes family faces, bleeding even into their one-on-one relationships with medical professionals. When Mama Might Be Better Off Dead was first published in the early 1990s, this frank discussion of medical racism was largely uncharted territory. As explained by Dr. Ansell in his foreword to the text, “[t]he concepts of ‘unconscious bias’ and ‘institutional racism’ and their impacts on health outcomes had not yet been widely researched and disseminated in the early 1990s” (1). Sociological analysis is thus incorporated into the text but expressed in layman’s terms since Abraham is not a sociologist herself. The text ultimately suggests that medicine cannot be considered in a silo but must be seen as part of a complex social system.
Oftentimes, this sociological thread is intersectional, as Abraham seeks to address gender, income, and religion at the same time that she tackles the overarching issue of race. The relationship between Jewish hospitals and doctors and Black patients is one of the most closely-followed of these intersections; Abraham is highly sympathetic to how Dr. Stone’s personal beliefs impact the way that he handles treatment. “Dr. Stone’s religious convictions keep him from pulling the plug,” she writes, “and he has qualms about referring patients to another physician who he knows will do so” (221). In cases where Stone is treating Jewish patients, this methodology tends to work well, but Abraham finds that it can become a problem when he treats patients from other religious and ethnic backgrounds, like the members of the Banes family.
Another key sociological intersection is Jackie’s familial role as the mother in her household, which places the burden of day-to-day care for all other family members on her shoulders and prevents her from being able to provide the thorough level of care for Cora that the healthcare professionals demand of her. Gender, marital status, parental status, and socioeconomic status all corner Jackie into a position whereby she is barely able to provide for her family members, much less herself. These are issues that Abraham finds to be beyond the purview of the medical professionals caring for the Banes family and yet negatively impact their healthcare nonetheless. Placing such sociological factors front-and-center, then, is a key aspect of her criticisms of the healthcare system, since it contradicts the field’s tendency to focus solely on medical science.
Over the course of shadowing doctors and their patients for two years, Abraham witnesses a significant number of fundamental miscommunications between the two groups. Furthermore, she finds that these seemingly minute issues can have serious long-term health implications for people like members of the Banes family, especially when many miscommunications are occurring simultaneously. This theme is established in the first pages of the book, when Abraham watches Robert Banes struggle to ascertain whether he will need surgery or not. “He also wanted to know how much longer he would have to stay in the hospital” (9), she observes; “‘You may have to go to surgery,’ the nurse said vaguely, flipping through his chart” (9). In this simple exchange, Abraham portrays the simplest form of miscommunication that will occur throughout the book; a medical professional and patient inadvertently talking past one another. As her investigation progresses, Abraham will explain how such misunderstandings occur on more complex and broad levels.
One of the most searing indictments of medical professionals’ inability to communicate with marginalized patients comes in Chapter 13 when doctors fail to consult the Banes family on how they would like Cora’s end-of-life care to be handled:
Wary of offending, not wanting to overstep his bounds or risk conflict with blacks and others whose beliefs were not second nature to him, he did not engage Jackie in a dialogue about what her grandmother might have wanted concerning further medical treatment. He did not probe Mrs. Jackson or Jackie to learn what they considered a life worth living (230).
Abraham observes that, in the case of Dr. Stone, the miscommunication did not come from a malicious intention but resulted in suffering for Cora nonetheless. Cultural incongruence often lies at the heart of these failures, as the above passage suggests. As a Jewish doctor treating Black Baptist patients, Dr. Stone obviously feels out of his depth in approaching the Banes family about topics as difficult as death.
Furthermore, the medical field’s history of enacting racial violence under the guise of “research” haunts the Black community and fuels mistrust that medical professionals often dismiss as irrational. Abraham writes: “The perception and the reality of second-class care—including unwanted, experimental care–inescapably stain and strain relationships between medical professionals and poor blacks” (212). By tracing these fundamental communication issues back to concrete cultural differences and histories, Abraham insists that they are resolvable, if only medical professionals can incorporate cultural and sociological awareness more thoroughly into their practices.
Plus, gain access to 9,150+ more expert-written Study Guides.
Including features: